Disney Blog Hop for Rett Sydnrome Awareness

  Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can’t use her hands to play with toys, or to even feed herself, and she may lose the ability to walk. 

Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.   

Rett Syndrome is caused by a mutation of the MECP2  gene on the X chromosome.  

Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.  

Rett  Syndrome affects 1 in 15,000 female births.  

*Symptoms of Rett Syndrome…

Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include…

*Developmental Regression or Plateau

*Near constant hand clasping or wringing

*Severe communication impairment

*Breathing problems

*Digestive issues

*Floppy arms and legs

*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.

*Scoliosis

*Seizures

*Slowing head growth

*Abnormal sleep patterns

*Transient loss of social engagement

*Poor circulation that can lead to cold and bluish arms and legs

*Anxiety

Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.

For more information you can visit…

http://www.rettsyndrome.org/

Now, are you ready for some blog candy???  We have a several wonderful and generous sponsors today…

1.  Lucy Kelleher

with Close to My Heart

$10 gift certificate for Close to My Heart products with Lucy 

Close To My
Heart

2.  Dee’s Delights Store

$20 Gift Certificate for Dee’s Store

3. Heather Stafford with…

Gemini Red Creations

A floating locket and your choice of two floating charms 

 

http://www.geminiredcreations.com/shop/floating-lockets/

4.  Diana Larson with

DLART

$10 Gift Certificate for DLART Store

https://www.etsy.com/shop/DLART

5.  Robin Lane with

Create-A-Latte

A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.

The kit comes with an Album, a pack of Insta Pocket Pages, “Say Cheese” Journal Kit, and the “Say Cheese” Snap Pack.

Without further ado…Our Disney Projects.
I am super excited to share my fun Disney card!

Be sure to head on over to Jenny HERE
for your next stop and see her wonderful project that she has made to share with you today.

If you get lost along the way here is the entire line up for today’s Blog Hop.

Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.